Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
530 total results
Discussion
How frequently should a Multiple Myeloma patient receive urine tests?
My father is in his 1st round of chemo (VRD) for Multiple Myeloma. He is a Mayo Patient and a hopeful SCT patient in Nov....
Last active: Aug 18, 2022
Discussion
Myeloma returned after 9 years of remission: Comments welcome
Multiple myeloma returning after 9 years of remission IGG Lambda numbers are high 1827 M spike 1.9 Kappa lambda ratio in normal range creatine .90...
Last active: May 21 8:32pm
Discussion
Low platelets interfere with cancer treatment
I have myeloma,treated with daratumumab,carfisomib,and pomalyst,.Recently blood platelets dropped even stopped these cancer treatments.I have taken Revlade(eltrombopaq) for two years already and still taking. I...
Last active: Jul 20, 2023
Discussion
Anyone had Zometa alone or Zometa plus Xgeva?
My heme/onc has prescribed Xgeva plus Zometa treatments for my Smoldering Myeloma next month. Anyone who's been treated with this combination or just with Zometa?...
Last active: Oct 31, 2025
Discussion
Anyone with myeloma experience a change in their sense of smell?
Hi,I have just been diagnosed with Multiple Myeloma but have not started any treatment yet.The timing isn't great with Ucare going away, just adds to...
Last active: Jan 8 8:35pm
Discussion
Has anyone had an Autologous Stem Cell Transplant after D-VRd therapy?
I just started treatment last Tuesday for Darzalex. That afternoon they got results from my PET showing some bone destruction in my femur and decided...
Last active: Apr 21 5:54am
Discussion
How to know whether smoldering myeloma or multiple myeloma?
Hello, hope you all are doing well!I have a situation with my mom(65 years old). From September my mom was on viral situation. When we...
Last active: Jan 29, 2024
Discussion
Has anyone been diagnosed with both AML and Multiple Myeloma?
I am a 79 year old who has been treated with venetoclax and decitabine for 2 years for my AML. I have been in remission...
Last active: Feb 18, 2024
Discussion
Has anyone had secondary cancers following Multiple Myeloma diagnosis?
I was diagnosed 4 years ago with MM. two years later I had melanoma on the bottom of my foot. In 2025 I have been...
Last active: Jun 6, 2025
Discussion
Smoldering Myeloma with Rising M-spike and Falling FLC's
I was diagnosed with low-risk Smoldering Myeloma IGG Lambda in 2023. CBC has stayed within normal range, but M-spike has been slowly rising. My bone...
Last active: Sep 9, 2025