Blood Cancers & Disorders Support Group

Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...

In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...

I am a patient urgently seeking answers and support for a complex, unresolved medical picture since 2017. My history includes avascular necrosis (requiring multiple orthopedic...

Hi, I’m 61 years old. Not 100% diagnosed yet. They still have to do a genetic organization test. But biopsy came back with elevated white...

Hey, I am a 36 year old mother of 2 who has been suffering from a debilitating undiagnosed illness for several years now. Below are...

Hi, my name is Gina and I am new to this site. I have been suffering for four years with very high heels on and...

I am just looking for guidance. This started about a year ago when I noticed a small bump behind my right ear. I went to...

My symptoms come and go and have been for a couple years now. My blood work appears normal. Has anyone had symptoms similar? All over...

I have been on HU for Essential Thrombocythemia since the first part of November with good results. My platelets have fallen from the mid 600s...

In the past year, I have had numerous bruises on my forearms. My dermatologist wrote them off as solar purposa.I also noticed I bleed very...