Blood Cancers & Disorders Support Group

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Comment

I just had a BMB 3-4 months ago and the lab report stated I had a...

https://connect.mayoclinic.org/comment/1636908/

Discussion: Hesitant on starting Hydrea for ET Jak 2

Support Group: Blood Cancers & Disorders

Posted: Aug 3 4:21pm

Comment

I would recommend anyone on hydroxyurea to look into Besremi. It has been shown to significantly...

https://connect.mayoclinic.org/comment/1204661/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Comment

My hematologist is looking into besremi for me and curious to everyone’s experience with it so...

https://connect.mayoclinic.org/comment/1638223/

Discussion: Has anyone been on BESREMI (Interferon)?

Support Group: Blood Cancers & Disorders

Posted: Aug 5 1:10pm

Comment

@hughp I have been diagnosed with Pre Fibrotic Primary Myelofibrosis. It was very hard for me...

https://connect.mayoclinic.org/comment/1640271/

Discussion: Myelofibrosis: Is there an age limit for bone marrow transplant (BMT)?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Comment

The support people at Onco360 pharmacy told me that Besremi can withstand temperatures of up to...

https://connect.mayoclinic.org/comment/1329785/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

Comment

I would also like to know how Besremi is working both in side effects and bringing...

https://connect.mayoclinic.org/comment/1607305/

Discussion: Hydroxyurea: what side effects were so bad you had to stop taking it?

Support Group: Blood Cancers & Disorders

Posted: Jun 27 9:17am

Comment

Has anyone been out on Besremi? I am about to start it so I can lower...

https://connect.mayoclinic.org/comment/1612997/

Discussion: Polycythemia Vera (PV) and fatigue: What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 6:23am

Comment

Thanks for your feedback. I just found out I had PV roughly 4 months ago (Jak2+)...

https://connect.mayoclinic.org/comment/1629041/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 25 10:32am

Comment

I transitioned from hydroxyurea to Besremi in February because hydroxyurea was not keeping my white cell...

https://connect.mayoclinic.org/comment/1431277/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

Comment

@sutt9101 Thank you for sharing, sutt9101. What you went through was awful. I'm so glad you...

https://connect.mayoclinic.org/comment/1604963/

Discussion: Hydroxyurea: what side effects were so bad you had to stop taking it?

Support Group: Blood Cancers & Disorders

Posted: Jun 24 5:45am

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