Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

387 total results

Comment

Good morning, @mags17 Polycythemia Vera is a blood condition where too many red blood cells are...

https://connect.mayoclinic.org/comment/919145/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Comment

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Comment

Hi @sharonm2023. Welcome to Connect. I promise you won’t be alone here! There are quite a...

https://connect.mayoclinic.org/comment/1209751/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

Comment

by 262mpeaches @262mpeaches My sister age 40 passed away 2 hours after she saw the doctor...

https://connect.mayoclinic.org/comment/816010/

Discussion: Blood clots leading from lungs to heart

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Comment

Hi @kittycatgirl, From personal experience with bone marrow biopsies at Mayo, they do indeed use a...

https://connect.mayoclinic.org/comment/946113/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Comment

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

Hi @rjohn3702, Polycythemia Vera is a very slowly developing blood cancer where your body produces too...

https://connect.mayoclinic.org/comment/840257/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the...

https://connect.mayoclinic.org/comment/1263596/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

Comment

Hi @hollz784 Oh golly, you have a lot going on right now and it’s understandable to...

https://connect.mayoclinic.org/comment/1442132/

Discussion: Jak2 mutations w/high WBC

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

Comment

@ettap you have a lot of reasonable questions. I'm not a doctor. I just have Jak2...

https://connect.mayoclinic.org/comment/919110/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023