Blood Cancers & Disorders Support Group

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Comment

@jeanette1954 From information I’ve gleaned over time, from my understanding HU can help to control the...

https://connect.mayoclinic.org/comment/1495236/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Jan 31 5:57pm

Comment

@1pearl my UCLA doctor is very nice but when I selected him we did not know...

https://connect.mayoclinic.org/comment/1421368/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

Comment

Hi @robinll. With PV (Polycytmenia Vera) it is generally the red blood count that is elevated,...

https://connect.mayoclinic.org/comment/1144372/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2024

Comment

Yes my husband had the JAK2 test after his platelets were in the 800's. And JAK2...

https://connect.mayoclinic.org/comment/1009781/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

Hi @draney, not getting enough air can sure make a person feel panicky. You have Polycythemia...

https://connect.mayoclinic.org/comment/887453/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

Hello @cgpak, I can understand your wanting to know about the experience of others with ET....

https://connect.mayoclinic.org/comment/337139/

Discussion: Spleen involvement in ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2021

Comment

My hubby was told like 20 years ago by his former PCP that his blood was...

https://connect.mayoclinic.org/comment/740738/

Discussion: Hemachromatosis...

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2022

Comment

Thank you Ms. Young, As you may know I am new to this website. My Wife...

https://connect.mayoclinic.org/comment/911895/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Comment

Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...

https://connect.mayoclinic.org/comment/1148497/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Comment

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023