Blood Cancers & Disorders Support Group

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Comment

@jodyjazz Hi Jody, sounds like you’re doing really well! As you read everyone’s posts, I’m sure...

https://connect.mayoclinic.org/comment/1551998/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 11:47am

Comment

@1pearl, I found another member diagnosed with MF with the CALR mutation and have put the...

https://connect.mayoclinic.org/comment/1256632/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Comment

Hi, I just read your post and am sorry that you are having a tough time...

https://connect.mayoclinic.org/comment/820895/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Comment

@garyr443 While it’s noble that you’d like to replace medications for Essential Thrombocythemia with ‘benign’ treatments...

https://connect.mayoclinic.org/comment/1588231/

Discussion: Hydroxyurea and Sun Exposure

Support Group: Blood Cancers & Disorders

Posted: Jun 1 9:21am

Comment

Welcome to Connect, Jean! As you’ve discovered, there are a number of members in the forum...

https://connect.mayoclinic.org/comment/1039680/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

Comment

Hello Tessa, my brother was diagnosed with ET (Essential Thrombocythemia) at the end of 2011. He...

https://connect.mayoclinic.org/comment/57927/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2012

Comment

Good Morning Tessa. I set up a google alert for Essential Thrombocythemia because of the rarity...

https://connect.mayoclinic.org/comment/57922/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2011

Comment

Hi @sharonm2023. Welcome to Connect. I promise you won’t be alone here! There are quite a...

https://connect.mayoclinic.org/comment/1209751/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

Comment

According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the...

https://connect.mayoclinic.org/comment/1263596/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

Comment

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

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