Blood Cancers & Disorders Support Group

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I have just been diagnosed with the rare blood cancer = Essential Thromocythaemia ET

https://connect.mayoclinic.org/comment/876054/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Comment

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Comment

Newly diagnosed with essential hemorrhagic thrombocythemia. Anyone else have this and would like to share their...

https://connect.mayoclinic.org/comment/1256481/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Comment

There's a lot of good info here - thanks to all who have shared. My first...

https://connect.mayoclinic.org/comment/1383530/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Comment

Hi @bettyk49 I see you’re new to our forum and I’m happy you found us. You...

https://connect.mayoclinic.org/comment/808138/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

Hi williamsjen, I understand your concern about the dosing of Hydrea. At least you started low...

https://connect.mayoclinic.org/comment/1224562/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2025

Comment

Hi Helen- Thanks for your post. I was diagnosed with Essential Thrombocytemia and mutant JAK2 genes...

https://connect.mayoclinic.org/comment/328576/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2020