Blood Cancers & Disorders Support Group

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Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

Comment

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Comment

I and my wife (Becky) who was diagnosed with ET with Jak2 mutation this September (2024)....

https://connect.mayoclinic.org/comment/1186365/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2024

Comment

Thanks pattycake11 Yes, all other blood work and scans ultra sounds didn’t show anything except the...

https://connect.mayoclinic.org/comment/1066227/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Comment

Hi there, I was diagnosed with CEL in December 2023 and will be having a stem...

https://connect.mayoclinic.org/comment/1061468/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Comment

Hi, Eileen, since I, too, was diagnosed this summer with ET JAK2, I would be interested...

https://connect.mayoclinic.org/comment/772655/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022

Comment

I was diagnosed with ET jak2 mutation a yr ago june..My plts range between 450 and...

https://connect.mayoclinic.org/comment/1116872/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Comment

@lexsjx I have a complete CBC every three months to monitor. Guessing that's what the doc...

https://connect.mayoclinic.org/comment/1529436/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 17 8:28pm

Comment

May I ask... what was everyone's Erythropoietin results? Mine was 5.. it's not "low" but more...

https://connect.mayoclinic.org/comment/842397/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

Comment

Hmmm I am from Canada. The HU capsules I was given are bright pink and blue....

https://connect.mayoclinic.org/comment/1161210/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024