Blood Cancers & Disorders Support Group

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Comment

@positivethinking Yes. I was first diagnosed with neuropathy, then MGUS and now Waldenstrom macroglobulinemia, say that...

https://connect.mayoclinic.org/comment/1453886/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

Comment

@kenc she is near Stanford so I am talking with her about getting a referral to...

https://connect.mayoclinic.org/comment/1452745/

Discussion: Diagnosing large B-cell lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Comment

@auntieoakley I am but my mother in law hasn’t agreed to it yet. She lives in...

https://connect.mayoclinic.org/comment/1451139/

Discussion: Diagnosing large B-cell lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

Comment

If only IgM is elevated, then Waldenstrom's Macroglobulinemia is possible. Rarer than MM, but much less...

https://connect.mayoclinic.org/comment/1448906/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

Comment

@dcuste also all my blood tests results I Google searched point to Waldenström macroglobulinemia (WM) —...

https://connect.mayoclinic.org/comment/1435917/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

Comment

My doctor is my oncologist that treats me for Waldenstroms non hodgkins …

https://connect.mayoclinic.org/comment/1424960/

Discussion: Waldenstroms patient diagnosed with brain menigioma: What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

Comment

Hello @jswv Some links I have squirreled away: - Have you joined the Waldenstrom's Foundation --...

https://connect.mayoclinic.org/comment/1394891/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

Comment

Thank you for your comment, and I’m sorry to hear about your husband. I am in...

https://connect.mayoclinic.org/comment/1393317/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2025

Comment

A friend was diagnosed with Leukemia who did stem cell transplant from her own body. She...

https://connect.mayoclinic.org/comment/1392561/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2025

Comment

I'm 68 years young and diagnosed with Waldenstrom's Macroglobulinemia 8 months ago. My oncologists/hematologists started me...

https://connect.mayoclinic.org/comment/1385201/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025