Blood Cancers & Disorders Support Group

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Comment

Wow! Thanks so much for the information Lori! I had done some research on my own...

https://connect.mayoclinic.org/comment/1365958/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Comment

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Comment

My platelet and red cell counts and hematocrit showed an increase last April on my annual...

https://connect.mayoclinic.org/comment/1538205/

Discussion: Hair Loss on hydroxyurea: Any experience with hair loss products?

Support Group: Blood Cancers & Disorders

Posted: Mar 29 5:21pm

Comment

Welcome, @jerrel, though I see you’ve been a member for several years but this is your...

https://connect.mayoclinic.org/comment/1239177/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2025

Comment

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

Hi @mordonmordon. Recently, while visiting my hematologist/oncologist for followup appts, my blood work showed an increasing...

https://connect.mayoclinic.org/comment/781624/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

Comment

I am 73 years old, diagnosed with Polycythemia Vera last August. Hdroxyurea treatment started with 500mg...

https://connect.mayoclinic.org/comment/1415002/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

Comment

sandy1959 @sandy1959, Itch (also known as pruritus) Yes! Itching is 100% sign of cancer look under...

https://connect.mayoclinic.org/comment/817590/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Comment

@rabab101, I found this information and negative or non-detectable JAK2 "Negative results for all JAK2 mutations...

https://connect.mayoclinic.org/comment/834318/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023