Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,446 total results

Comment

Hi @jeanette1954 A diagnosis of Polycythemia Vera (PV) usually indicates that the person has an underlying...

https://connect.mayoclinic.org/comment/1494793/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:33am

Comment

Christinele, There are also a lot of ET JAK2 discussions on healthunlocked.com. It originates in the...

https://connect.mayoclinic.org/comment/845595/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

I was diagnosed with ET Jak2 over a year ago my PLTS range from 450 -...

https://connect.mayoclinic.org/comment/1146979/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Comment

That’s great news for you. We’re all different, and so are of course each of our...

https://connect.mayoclinic.org/comment/840938/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

I have ET with JAK2. Please see my post: https://connect.mayoclinic.org/discussion/essential-thrombocythemia-treatment-with-besremi/?pg=3#comment-1321409 I am happy to answer any...

https://connect.mayoclinic.org/comment/1321411/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

Comment

I am amazed at the amount of HU some people are taking. I take 500 mg...

https://connect.mayoclinic.org/comment/877802/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Comment

I was newly diagnosed with ET with the JAK2 mutation. I do have the red feet....

https://connect.mayoclinic.org/comment/785397/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

Comment

I have Jak2 diagnosed in 2019. Was stationed at New River for three years. VA doctor...

https://connect.mayoclinic.org/comment/732843/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

Comment

I checked with my hemo/oncologist and taking B12 as advised by my PCP is ok with...

https://connect.mayoclinic.org/comment/1091499/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

I have not heard about a link between JAK2 and the COVID-19 vaccinations. When my doctor...

https://connect.mayoclinic.org/comment/1032105/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024