Blood Cancers & Disorders Support Group

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Comment

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the...

https://connect.mayoclinic.org/comment/1263596/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

Comment

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

Hello Tessa, my brother was diagnosed with ET (Essential Thrombocythemia) at the end of 2011. He...

https://connect.mayoclinic.org/comment/57927/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2012

Comment

Good Morning Tessa. I set up a google alert for Essential Thrombocythemia because of the rarity...

https://connect.mayoclinic.org/comment/57922/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2011

Comment

Good morning @daelitesmom. Glad I had my cup of tea in hand to read through your...

https://connect.mayoclinic.org/comment/1456025/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

Comment

Hello Colleen, Thank you for your reply. Looking forward to msg someone who has used this...

https://connect.mayoclinic.org/comment/969263/

Discussion: VonJo (pacritinib) effects

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2023

Comment

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

Hey dunewalker, I did the bone marrow biopsy last week at Mayo and went over results...

https://connect.mayoclinic.org/comment/1293666/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Comment

Hi Linda. Hydroxyurea is a standard first line treatment for some blood conditions such as ET....

https://connect.mayoclinic.org/comment/1146907/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2024