Blood Cancers & Disorders Support Group

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Comment

Anna, I had year fluctuations of platelet levels, all over normal, for almost 30 years before...

https://connect.mayoclinic.org/comment/826050/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

I don't think experts understand or can entirely explain MPN disease progression. Nobody can predict who...

https://connect.mayoclinic.org/comment/1349313/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2025

Comment

My health is a bit like that of Lourdene's--65 years old, long time high platelets but...

https://connect.mayoclinic.org/comment/941362/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

Hi @treeore Love the idea of your new toy for summer! You’ll have a blast out...

https://connect.mayoclinic.org/comment/866050/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Comment

@vivoconte It amazes me far reaching this disease can occur. I am glad you connected with...

https://connect.mayoclinic.org/comment/1414942/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

Comment

@sdcgcarroll Sadly, you will not find a comprehensive list of symptoms and side effects because they...

https://connect.mayoclinic.org/comment/1538563/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 8:36am

Comment

Lots of good comments here. Just remember that everyone had a slightly different journey. I see...

https://connect.mayoclinic.org/comment/1541970/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 3 11:35am

Comment

@dragonflylynda I keep masks in my purse in case I encounter a crowd. I avoid theaters...

https://connect.mayoclinic.org/comment/1470138/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

Comment

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Comment

My platelets got over one million. I had been on HU but after 6 months I...

https://connect.mayoclinic.org/comment/1482041/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 14 10:05am

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