Blood Cancers & Disorders Support Group

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Comment

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Comment

I don't think anyone is telling people not to travel, just to take their meds and,...

https://connect.mayoclinic.org/comment/1089550/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

Comment

For everyone’s info, I messaged through the patient portal and was told up to 10 days...

https://connect.mayoclinic.org/comment/231795/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

Comment

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Comment

Hi Sarah, you haven’t posted an update and I was wondering if you’ve had any news...

https://connect.mayoclinic.org/comment/873122/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

Hi John, My name is Debbie. I was just diagnosed with CEL IN December 2023. I...

https://connect.mayoclinic.org/comment/997143/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Comment

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

Comment

I also have ET JAK2. I am taking Hydroxyurea. I do not take aspirin because I...

https://connect.mayoclinic.org/comment/1017787/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

Comment

I just hope this isn't preventing you from getting the correct treatment/relief. I would imagine it...

https://connect.mayoclinic.org/comment/231793/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2019

Comment

I'm 76 and was diagnosed last year with ET JAK2. So far I'm only on 1...

https://connect.mayoclinic.org/comment/1513671/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 12:55pm