Blood Cancers & Disorders Support Group

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Comment

Great to hear of someone doing well. Cheers. One thing I would say to consider, is...

https://connect.mayoclinic.org/comment/771273/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

Comment

After being diagnosed with ALL, then T-Cell large granular LL. I wondered by my platelets went...

https://connect.mayoclinic.org/comment/1325185/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Comment

In 2004, I was diagnosed with Essential Thrombocythemia (ET) at the age of 32. This diagnosis...

https://connect.mayoclinic.org/comment/1225769/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

Comment

Welcome @betherelynda and @arti4. I moved your recent posts about essential thrombocythemia and hydroxyurea to this...

https://connect.mayoclinic.org/comment/729870/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2022

Comment

I am 65 years old and seem to be a rare male here. Not surprising since...

https://connect.mayoclinic.org/comment/1117080/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Comment

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Comment

Hi @cweible19782006 I just read through your reply and my first thought was, “Wow…with friends like...

https://connect.mayoclinic.org/comment/821825/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

I have had essential thrombocythemia since 2022. My oncologist put me on hydroxyurea 1000 mg a...

https://connect.mayoclinic.org/comment/1498573/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 9:07am

Comment

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...

https://connect.mayoclinic.org/comment/284527/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2019

Comment

Hi @divaterry, Well, dare I say welcome? I’m sure the news of having ET or essential...

https://connect.mayoclinic.org/comment/1548555/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 12 9:24am

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