Blood Cancers & Disorders Support Group

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Comment

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

Hi @cmercer50 So glad you jumped into the ET discussion. Being able to connect with other...

https://connect.mayoclinic.org/comment/1448719/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

Comment

Hi Jean, hope you had a fabulous christmas. Saw my Thyroid specialist, who has recommended that...

https://connect.mayoclinic.org/comment/1467731/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2025

Comment

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Comment

I am not a farmer but I have ET (essential thrombocythemia). I have had it for...

https://connect.mayoclinic.org/comment/913030/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Comment

@jodyjazz Hi Jody, sounds like you’re doing really well! As you read everyone’s posts, I’m sure...

https://connect.mayoclinic.org/comment/1551998/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 11:47am

Comment

Yes, and Yes I am doing the 500 mg twice daily (one in AM one in...

https://connect.mayoclinic.org/comment/792898/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Comment

Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...

https://connect.mayoclinic.org/comment/826011/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Comment

It is a big decision to start on hydroxyurea and all of us have a different...

https://connect.mayoclinic.org/comment/780799/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022