Blood Cancers & Disorders Support Group

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Comment

Hi @draney, not getting enough air can sure make a person feel panicky. You have Polycythemia...

https://connect.mayoclinic.org/comment/887453/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

Ok from what I’m understanding is that you’ve been diagnosed with polycythemia vera. This is a...

https://connect.mayoclinic.org/comment/1137715/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7 9:04am

Comment

Yes my husband had the JAK2 test after his platelets were in the 800's. And JAK2...

https://connect.mayoclinic.org/comment/1009781/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 6:16am

Comment

My hubby was told like 20 years ago by his former PCP that his blood was...

https://connect.mayoclinic.org/comment/740738/

Discussion: Hemachromatosis...

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2022

Comment

Thank you Ms. Young, As you may know I am new to this website. My Wife...

https://connect.mayoclinic.org/comment/911895/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Comment

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Comment

Mtnlife, I too had no symptoms of anything prior to a routine blood test. in March...

https://connect.mayoclinic.org/comment/783874/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Comment

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019

Comment

I was diagnosed with PV in February 2021. My hematologist goes by my hemoglobin number, which...

https://connect.mayoclinic.org/comment/843409/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023