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Discussion
Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?
I developed Sjogrens's a couple of years after being diagnosed with Essential Thrombocythemia. Anyone else experience the same?Go fight, my warrior friends
Last active: May 7 4:01pm
Discussion
Essential thrombocythemia: Interested in connecting with others
I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...
Last active: Sep 25, 2025
Discussion
Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?
I felt confused and freaked out after the diagnosis. It seemed no one knew much about ET. I didn't know that hydroxyurea was chemo in...
Last active: Apr 28 4:48am
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Last active: Jun 4, 2025
Discussion
Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Last active: Mar 25, 2023
Discussion
Essential Thrombocythemia: Making treatment decisions
I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...
Last active: Jan 17 8:15am
Discussion
Does Essential Thrombocythemia cause hip pain?
Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.
Last active: Feb 8, 2024
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Last active: Aug 13, 2025
Discussion
Essential thrombocythemia (ET): When to start hydroxyurea (HU)?
I was just diagnosed with ET. I am 61 years old. My platelet count is 640k right now.Doctor suggested I take a baby aspirin everyday...
Last active: Apr 24 9:38am