Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
288 total results
Discussion
Essential Thrombocythemia: Making treatment decisions
I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...
Last active: Jun 4 10:23am
Discussion
Essential thrombocythemia: Interested in connecting with others
I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...
Last active: Oct 16, 2024
Discussion
Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Last active: Mar 25, 2023
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Last active: Jun 4 6:50pm
Discussion
Husband has Essential Thrombocythemia (ET) & MCI
My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...
Support Group: Caregivers: Dementia
Last active: Jul 7, 2021
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Last active: Apr 10, 2023
Discussion
Does Essential Thrombocythemia cause hip pain?
Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.
Last active: Feb 8, 2024
Discussion
A link between Rheumatoid Arthritis and Essential Thrombocythemia?
Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?
Last active: Feb 9, 2024
Discussion
Is it okay to take B12 with essential thrombocythemia (ET)?
I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?
Last active: Jan 4 6:27pm