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Blood Cancers & Disorders Support Group

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Discussion
Essential Thrombocythemia: Looking for information and support
I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...
Last active: Dec 23, 2025
Discussion
Essential Thrombocythemia: Making treatment decisions
I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...
Last active: 1 day ago
Discussion
Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Last active: Mar 25, 2023
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Last active: Jun 4, 2025
Discussion
Husband has Essential Thrombocythemia (ET) & MCI
My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...
Support Group: Caregivers: Dementia
Last active: Jul 7, 2021
Discussion
Does Essential Thrombocythemia cause hip pain?
Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.
Last active: Feb 8, 2024
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Last active: Aug 13, 2025
Discussion
Is it okay to take B12 with essential thrombocythemia (ET)?
I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?
Last active: Jan 4, 2025
Discussion
Essential thrombocythemia (ET): When to start hydroxyurea (HU)?
I was just diagnosed with ET. I am 61 years old. My platelet count is 640k right now.Doctor suggested I take a baby aspirin everyday...
Last active: Nov 18, 2025