316 total results
Discussion
Anyone living with Essential Thrombocythemia with JAK2?
Has anyone been living with,ET, jac2 mutation
Discussion
Essential Thrombocythemia: Looking for information and support
I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...
Discussion
Essential Thrombocythemia: Making treatment decisions
I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...
Discussion
Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Discussion
Husband has Essential Thrombocythemia (ET) & MCI
My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...
Discussion
Does Essential Thrombocythemia cause hip pain?
Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Discussion
Is it okay to take B12 with essential thrombocythemia (ET)?
I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?
Discussion
Essential thrombocythemia (ET): When to start hydroxyurea (HU)?
I was just diagnosed with ET. I am 61 years old. My platelet count is 640k right now.Doctor suggested I take a baby aspirin everyday...
Comment
@jeanette1954, welcome. Do you have essential thrombocythemia? Are you on treatment?
https://connect.mayoclinic.org/comment/1462393/
Comment
Welcome @jaebless. It's so unsettling to see blood lab results before having a chance to discuss...
Comment
@bobala, Many people have asked a similar question when diagnosied with one of the several types...
Comment
Hi @cindy, Welcome to Connect. It sounds like you have experience with ET. We have several...
Connect