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Comment

Would your CTCL be Sezary Syndrome or MF? I have SS, have asked about phototherapy but...

https://connect.mayoclinic.org/comment/1111393/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

I have CTCL and it was confirmed with biopsy. I was given an ointment and told...

https://connect.mayoclinic.org/comment/973469/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Comment

i sent a reply in earlier on another thread on my CTCL treatment process. it went...

https://connect.mayoclinic.org/comment/1095424/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Comment

I was diagnosed with CTCL in March 2023. We started treating with Valchlor gel (special order/cold...

https://connect.mayoclinic.org/comment/1095409/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Comment

Hi. I have mycosis fungoides which is a common type of CTCL. I am not an...

https://connect.mayoclinic.org/comment/973484/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Comment

Hi @mrducks. Welcome to Connect. Let’s get you over to the right support group where you’ll...

https://connect.mayoclinic.org/comment/1252153/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

My son has recently been diagnosed with CTCL. I am very interested in treatments that will...

https://connect.mayoclinic.org/comment/1545431/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 8:01am

Comment

No I have not spoken to genetics counselor. I wonder how many people have had Non-Hodgkin...

https://connect.mayoclinic.org/comment/1035963/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2024

Comment

Hi Cindylb, I was diagnosed with cutaneous T-cell lymphoma in 2017. I had a hysterectomy and...

https://connect.mayoclinic.org/comment/1523568/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 9 9:28pm

Comment

So my original biopsy was inconclusive, but strongly suggestive of CTCL. My regular dermatologist really leaned...

https://connect.mayoclinic.org/comment/1293628/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

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