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Discussions (35)
Comments (261)
Comment
I've had essential thrombocythemia symptoms for 15 years now. I'm 70. To the best of my...
https://connect.mayoclinic.org/comment/929592/
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Discussion:
Thrombocythemia and need neck surgery: Will surgery make it worse?
Support Group:
Blood Cancers & Disorders
Posted: Sep 13, 2023
Comment
It is a big decision to start on hydroxyurea and all of us have a different...
https://connect.mayoclinic.org/comment/780799/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Dec 4, 2022
Comment
Hi @marthajones. Having Essential Thrombocythemia and being on on Hydroxyurea, your immune system won’t be as...
https://connect.mayoclinic.org/comment/782048/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Dec 7, 2022
Comment
Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....
https://connect.mayoclinic.org/comment/1367613/
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Discussion:
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Support Group:
Blood Cancers & Disorders
Posted: Aug 10 10:40am
Comment
Hi everyone. I am a 68 year old woman, physically active with controlled asthma. I just...
https://connect.mayoclinic.org/comment/887042/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 29, 2023
Comment
"At 82 yes I would like to keep other parts of me as healthy as possible....
https://connect.mayoclinic.org/comment/783143/
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Discussion:
People living with ET and taking Hydrea: Anybody setting records?
Support Group:
Blood Cancers & Disorders
Posted: Dec 10, 2022
Comment
Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...
https://connect.mayoclinic.org/comment/336437/
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Discussion:
JAK2 negative with high platelets
Support Group:
Heart & Blood Health
Posted: Mar 2, 2021
Comment
Dx of MPN Myeloproliferative disorder ET Essential thrombocythemia JAK2 positive in June 2024. I am allergic...
https://connect.mayoclinic.org/comment/1270799/
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Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Mar 31 10:02am
Comment
Just so we're all on the same page, here's what yr referencing: Cytoreductive treatment with hydroxyurea...
https://connect.mayoclinic.org/comment/1297950/
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Discussion:
What’s the cost of Pegasys with good commercial insurance?
Support Group:
Blood Cancers & Disorders
Posted: May 6 7:00am
Comment
@loribmt thank you so much for your kind words! Made me tear up....because you are so...
https://connect.mayoclinic.org/comment/757007/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Oct 4, 2022
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