Blood Cancers & Disorders Support Group

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Comment

Thank you so much. My next appointment is March 13. They have been giving me a...

https://connect.mayoclinic.org/comment/808358/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

Comment

In 2018 I was diagnosed with Polycythemia Vera (PV) which is a sister to your essential...

https://connect.mayoclinic.org/comment/1219391/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Comment

I have recently been diagnosed with Essential Thrombocythemia as I had slightly elevated platelets on routine...

https://connect.mayoclinic.org/comment/1260307/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025

Comment

Hi @dewz13 It’s not unusual for blood numbers to fluctuate when we receive vaccines. Most people...

https://connect.mayoclinic.org/comment/1549508/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 13 9:42am

Comment

Thanks to katgob and janemc for your responses. I take the HU to lower my platelet...

https://connect.mayoclinic.org/comment/1217203/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

Comment

Oh my - 12 BMB in 2 years! Wow. I am happy that you're experience with...

https://connect.mayoclinic.org/comment/607951/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

Comment

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Comment

Welcome, @lourdene. There are many members here living with essential thrombocythemia with JAK2. Specifically, I believe...

https://connect.mayoclinic.org/comment/788174/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Comment

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024