Blood Cancers & Disorders Support Group

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Comment

After being diagnosed with ALL, then T-Cell large granular LL. I wondered by my platelets went...

https://connect.mayoclinic.org/comment/1325185/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Comment

In 2004, I was diagnosed with Essential Thrombocythemia (ET) at the age of 32. This diagnosis...

https://connect.mayoclinic.org/comment/1225769/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

Comment

Hi @cweible19782006 I just read through your reply and my first thought was, “Wow…with friends like...

https://connect.mayoclinic.org/comment/821825/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...

https://connect.mayoclinic.org/comment/284527/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2019

Comment

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Comment

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Comment

Hi @mirakrye Well, that’s a heckuva way to ring in the new year with a change...

https://connect.mayoclinic.org/comment/1479514/

Discussion: Are their support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 10:03am

Comment

I am not a farmer but I have ET (essential thrombocythemia). I have had it for...

https://connect.mayoclinic.org/comment/913030/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Comment

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025