Blood Cancers & Disorders Support Group

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Comment

Regarding your feeling alone. in 2018 when I was inducted into the polycythemia vera club I...

https://connect.mayoclinic.org/comment/1219395/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Comment

Hello Lori, You once commented on a response I made about finding a specialist for MPNs....

https://connect.mayoclinic.org/comment/1064989/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 9, 2024

Comment

Yes, I was diagnosed in May of 2022 but have had symptoms since 2019. I had...

https://connect.mayoclinic.org/comment/738411/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

Hi @hope19, I moved your message to this existing discussion about Polycythemia Vera so that you...

https://connect.mayoclinic.org/comment/231808/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2020

Comment

Hi Lori! I purchased the Bioaid Hemoglobin Testing System on Amazon. It was 82.00. It resembles...

https://connect.mayoclinic.org/comment/878178/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

@pamdg, you may be interested in these related discussions: - What's the latest Jakafi (ruxolitinib) for...

https://connect.mayoclinic.org/comment/1444333/

Discussion: JAKAFI anyone! I've been on it for 5 years

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

Comment

Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,...

https://connect.mayoclinic.org/comment/1079339/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 2, 2024

Comment

Welcome to Mayo Connect, @ausableriver I’m happy you found us and decided to bypass Dr Google....

https://connect.mayoclinic.org/comment/875590/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Comment

The best thing that I have found for dealing with polycythemia vera has been to adhere...

https://connect.mayoclinic.org/comment/787372/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Comment

I was diagnosed with Polycythemia Vera 3 years ago. My treatment included regular phlebotomies every couple...

https://connect.mayoclinic.org/comment/1185667/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024