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237 total results
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Discussions (30)
Comments (207)
Comment
I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...
https://connect.mayoclinic.org/comment/910025/
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Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Aug 9, 2023
Comment
Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...
https://connect.mayoclinic.org/comment/194256/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Mar 29, 2018
Comment
My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...
https://connect.mayoclinic.org/comment/1091333/
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Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Jun 21 5:57pm
Comment
Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...
https://connect.mayoclinic.org/comment/1076631/
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Discussion:
Is my treatment a bit aggressive?
Support Group:
Blood Cancers & Disorders
Posted: May 28 4:39pm
Comment
I had a TIA at the end of 2014. After seeing many Doctors one Doctor referred...
https://connect.mayoclinic.org/comment/803429/
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Discussion:
Essential Thrombocythemia (ET) and viruses
Support Group:
Blood Cancers & Disorders
Posted: Jan 29, 2023
Comment
I was recently diagnosed with Essential thrombocythemia. My platelet count was in the upper 700's. Hematologist...
https://connect.mayoclinic.org/comment/941461/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Oct 3, 2023
Comment
If you decide to take HU, try it a couple of times per week for a...
https://connect.mayoclinic.org/comment/1022375/
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Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Feb 25 1:00pm
Comment
Hi @mtnlife, we’re often our own worst enemies when it comes to all things medical. I...
https://connect.mayoclinic.org/comment/791520/
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Discussion:
High Platelets
Support Group:
Blood Cancers & Disorders
Posted: Jan 2, 2023
Comment
Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...
https://connect.mayoclinic.org/comment/969785/
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Discussion:
JAK2 V617F positive, now what?
Support Group:
Blood Cancers & Disorders
Posted: Nov 24, 2023
Comment
Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia...
https://connect.mayoclinic.org/comment/967884/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Nov 20, 2023
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