Blood Cancers & Disorders Support Group

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Comment

Hi Victoria, I see that you haven't yet found answers regarding your bone pain. I merged...

https://connect.mayoclinic.org/comment/1142184/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Comment

Okay, so I have a diagnosis, but it really is not that clear. The pathology report...

https://connect.mayoclinic.org/comment/806600/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

Comment

@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes...

https://connect.mayoclinic.org/comment/1111659/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Comment

I've seen lots of comments here about itchy, dry skin, and unfortunately I experience it too....

https://connect.mayoclinic.org/comment/1203450/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2025

Comment

My platelets were 1094 when I was dx with Essential Thrombocythemia 4 or 5 months ago....

https://connect.mayoclinic.org/comment/923136/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

Comment

@lehall125 You and others might find my experience informative. I was diagnosed with essential thrombocythemia about...

https://connect.mayoclinic.org/comment/1471947/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:39am

Comment

Hi, @rosew1969 Welcome to Connect…I’m so happy to see you here! Your positivity is infectious with...

https://connect.mayoclinic.org/comment/1411805/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Comment

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Comment

I saw the following comment and it may help you understand this condition further : "...

https://connect.mayoclinic.org/comment/1102762/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024