Blood Cancers & Disorders Support Group

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Comment

@tamijulien I just got back from Mayo Clinic in Phoenix where I saw wonderful hematologist oncologist...

https://connect.mayoclinic.org/comment/1550447/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 12:50pm

Comment

Welcome Mayo Connect, @ally6lucas1 You popped into the right support group for members who have ET...

https://connect.mayoclinic.org/comment/1589193/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 2:10pm

Comment

Hi @shree, I know you are concerned that most of the discussions you’ve found on ET...

https://connect.mayoclinic.org/comment/1269512/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

Comment

Hi @sandy1959, while not specific to essential thrombocythemia and its treatments, I thought you might be...

https://connect.mayoclinic.org/comment/859808/

Discussion: Hair loss with ET and on hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Comment

Hi, I have had Essential Thrombocythemia for over 15 years. I was on Anagrelide, and this...

https://connect.mayoclinic.org/comment/1202567/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Comment

Hello - I have Essential Thrombocythemia but not diabetic. Have been treated with Hydroxyurea for sometime....

https://connect.mayoclinic.org/comment/1111717/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

I have Essential Thrombocythemia. Started with 3 pills weekly of hydroxyurea, and now at once a...

https://connect.mayoclinic.org/comment/997644/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2024

Comment

Welcome to @laurenashleyy. My daughter is just a couple years older than you are and I...

https://connect.mayoclinic.org/comment/895467/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

Good morning, @jose10. What a lovely thing to say!! This is one of those really ‘feel...

https://connect.mayoclinic.org/comment/1458352/

Discussion: Thanks: Just want to say thank you

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

Comment

Okay, so I have a diagnosis, but it really is not that clear. The pathology report...

https://connect.mayoclinic.org/comment/806600/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

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