Blood Cancers & Disorders Support Group

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Comment

@scnana Welcome to Mayo Clinic Connect! Getting a double diagnosis is certainly not for the faint-hearted,...

https://connect.mayoclinic.org/comment/1009127/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Comment

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Comment

Hi @mtnlife, It’s wonderful news that there’s no sign of CML or other blood cancers. So...

https://connect.mayoclinic.org/comment/786698/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Comment

Triple Negative Essential Thrombocythemia hi all, I have seen my platelet counts going up over past...

https://connect.mayoclinic.org/comment/942512/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

Comment

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Comment

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

Comment

I have had Essential Thrombocythemia for over 8 years and been on Hydroxyurea (Hydrea) the whole...

https://connect.mayoclinic.org/comment/893493/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

In 2018 I was diagnosed with Polycythemia Vera (PV) which is a sister to your essential...

https://connect.mayoclinic.org/comment/1219391/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Comment

Thank you so much. My next appointment is March 13. They have been giving me a...

https://connect.mayoclinic.org/comment/808358/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

I have recently been diagnosed with Essential Thrombocythemia as I had slightly elevated platelets on routine...

https://connect.mayoclinic.org/comment/1260307/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025