Blood Cancers & Disorders Support Group

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Comment

@1pearl Hello friends! Thank you for your posts ! I am battling rare MPN CALLED MYELOFIBROSIS!!...

https://connect.mayoclinic.org/comment/1433127/

Discussion: Asked chatGPT about how long to be on treatment for Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Comment

Hi everyone I just started taking hydroxyurea it’s only been a week. I’m on 500 one...

https://connect.mayoclinic.org/comment/1016598/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Comment

Thank you for your quick response. Can you help me understand a bit more?--he said the...

https://connect.mayoclinic.org/comment/194309/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

Comment

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

Comment

Hi @sap21981, from my research and understanding, a stem cell transplant for PV is rarely used....

https://connect.mayoclinic.org/comment/893527/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

Yes, that’s exactly what I did. For two years, I had uncontrollable itching and no other...

https://connect.mayoclinic.org/comment/876352/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Comment

Have you been diagnosed with PV? Your platelets are just slightly high and not dangerous. I...

https://connect.mayoclinic.org/comment/846633/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Comment

I’m diagnosed with PV Polycythemia Vera. The phlebotomies are to lower my hematocrit but I’ve noticed...

https://connect.mayoclinic.org/comment/835194/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

Comment

Hello friends!! I have confirmed MYELOFIBROSIS! Just started taking OJJAARA ABOUT TEN DAYS AGO ! This...

https://connect.mayoclinic.org/comment/1411968/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Comment

The meds will work but takes a while to get the dosage correct. My platelets were...

https://connect.mayoclinic.org/comment/1064057/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2024