Blood Cancers & Disorders Support Group

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Comment

My husband found out in January he has myelofibrosis, it was a shock to us. He...

https://connect.mayoclinic.org/comment/1412275/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Comment

Has anyone else had problems with joint pain while taking Vidaza (Azacitidine) infusions for MDS? I...

https://connect.mayoclinic.org/comment/1548915/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 12 3:13pm

Comment

This is so encouraging. I am On venetoclax snd vidaza. I just finished my first 5...

https://connect.mayoclinic.org/comment/1408194/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

Comment

Hi @desertjulie. There are other drugs used to treat MDS, but your husband's physician probably recommended...

https://connect.mayoclinic.org/comment/88394/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2017

Comment

Hi Elizabeth! That’s really great news about your husband’s response to the Vidaza. It has a...

https://connect.mayoclinic.org/comment/1273119/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

Comment

I have the same issues that you described. I have MDS with 5q deletion & have...

https://connect.mayoclinic.org/comment/1591223/

Discussion: Myelodysplastic Syndromes (MDS), leg weakness & walking

Support Group: Blood Cancers & Disorders

Posted: Jun 5 9:47am

Comment

Hello! Thank you for your message, rjperk633 (@rjperk633). I relayed your words to my partner. She'll...

https://connect.mayoclinic.org/comment/1385329/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

Comment

I am sorry to hear about your dad. I have AML and just finished my first...

https://connect.mayoclinic.org/comment/1419669/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

Comment

Also looking for Rytelo information. It’s so new we may not get much for experience on...

https://connect.mayoclinic.org/comment/1199195/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Comment

Have not heard of hearing loss after Vidaza shots . We have a problem here with...

https://connect.mayoclinic.org/comment/1419804/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

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