Blood Cancers & Disorders Support Group

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Comment

Hello! Thank you for your message, rjperk633 (@rjperk633). I relayed your words to my partner. She'll...

https://connect.mayoclinic.org/comment/1385329/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

Comment

I am sorry to hear about your dad. I have AML and just finished my first...

https://connect.mayoclinic.org/comment/1419669/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

Comment

Also looking for Rytelo information. It’s so new we may not get much for experience on...

https://connect.mayoclinic.org/comment/1199195/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Comment

Have not heard of hearing loss after Vidaza shots . We have a problem here with...

https://connect.mayoclinic.org/comment/1419804/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

Comment

@loribmt You are very comforting ! Thank you for being here on line . My husband...

https://connect.mayoclinic.org/comment/1524602/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:59am

Comment

Do you know what might be recommended when Revlimid for a 5q deletion patient fails? Procrit...

https://connect.mayoclinic.org/comment/856002/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Comment

I had the itching tesllly bad and took loratadine which eventually kicked in. I was on...

https://connect.mayoclinic.org/comment/1430231/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Comment

Thank you for the message and information. 🙏 it means so much to my husband and...

https://connect.mayoclinic.org/comment/1255061/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

Comment

That’s excellent news! There have been so many positive changes in the advancement for treating MDS...

https://connect.mayoclinic.org/comment/1250925/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Comment

Jenn2458 Something very important I forgot to mention....vidaza and venetoclax work in combination to kill and...

https://connect.mayoclinic.org/comment/1241013/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025