Blood Cancers & Disorders Support Group

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Comment

Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...

https://connect.mayoclinic.org/comment/896933/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Comment

@cec2 This reply you wrote to @birgitr about your ET (essential thrombocythemia) experience is outstanding on...

https://connect.mayoclinic.org/comment/1494291/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 1:28pm

Comment

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Comment

ET, cancer or not? I realize doctors disagree. But be aware that if you are applying...

https://connect.mayoclinic.org/comment/1048393/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Comment

Hi @kroolivera. You bring up a valid concern regarding your diagnosis and childbearing. As it just...

https://connect.mayoclinic.org/comment/203942/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2018

Comment

Hi @kapow. While you’re waiting for other members taking hydroxy to Essential thrombocythemia can also impact...

https://connect.mayoclinic.org/comment/1026013/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Comment

Welcome back @esperanzam. You'll notice that I moved your message to this existing discussion about Essential...

https://connect.mayoclinic.org/comment/146321/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

Comment

I have ET, and have tested negative for the JAC2. I've been taking Hydrea 500mg for...

https://connect.mayoclinic.org/comment/194260/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Comment

@lehall125 You and others might find my experience informative. I was diagnosed with essential thrombocythemia about...

https://connect.mayoclinic.org/comment/1471947/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:39am

Comment

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024