Blood Cancers & Disorders Support Group

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316 total results

Comment

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Comment

Hi, @lea123. Welcome to Mayo Connect. I’m happy you found our great community forum. I wish...

https://connect.mayoclinic.org/comment/668147/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2022

Comment

Hi Tessa! I was diagnosed with essential thrombocythemia in 2019 at the age of 64. My...

https://connect.mayoclinic.org/comment/1148876/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Comment

Hi @suanne90. You’ve popped into a conversation in the Blood Cancers & Disorders Support Group. The...

https://connect.mayoclinic.org/comment/1166282/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

Comment

Hello @kapow and @winmil99. Welcome to Mayo Connect! I thought I’d include both of you in...

https://connect.mayoclinic.org/comment/887257/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

Hi Jean, hope you had a fabulous christmas. Saw my Thyroid specialist, who has recommended that...

https://connect.mayoclinic.org/comment/1467731/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2025

Comment

Just the hydroxy. i am still waiting to learn what the next step will be. My...

https://connect.mayoclinic.org/comment/791454/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Comment

Hi @healedbytheblood0119, you're right to do your research about best treatments for essential thrombocythemia. Anagrelide and...

https://connect.mayoclinic.org/comment/1010081/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

Hi @emma1971, Welcome to Connect. The medication you’re referring to, Ruxolitinib is actually a medication used...

https://connect.mayoclinic.org/comment/1293785/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Comment

I also have ET. I need to find out if it is Essential Thrombocythemia or thrombocytosis?...

https://connect.mayoclinic.org/comment/805573/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023