Blood Cancers & Disorders Support Group

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Comment

Hi @mirakrye Well, that’s a heckuva way to ring in the new year with a change...

https://connect.mayoclinic.org/comment/1479514/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 10:03am

Comment

I originally had a platelet count of 555 that started my journey. I was diagnosed with...

https://connect.mayoclinic.org/comment/780489/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Comment

Hi @pennyhedgecoth, I'm tagging @stevehurlburt on this reply since I think your question about genetic testing...

https://connect.mayoclinic.org/comment/591406/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2021

Comment

Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...

https://connect.mayoclinic.org/comment/231778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Comment

Wow That’s a bit crazy especially being that that particular blood test is very expensive! Mine...

https://connect.mayoclinic.org/comment/1058604/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

Comment

Hi @chella65 I found a relevant discussion for you with other members who have PV and...

https://connect.mayoclinic.org/comment/881483/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

Comment

Hi @saucy, In this case PV is Polycythemia Vera. It’s A type of blood cancer where...

https://connect.mayoclinic.org/comment/818232/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

Comment

@1pearl would you mind sharing your doctors name at City of Hope? I’ve been considering going...

https://connect.mayoclinic.org/comment/1420257/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Comment

I have been on HU for about five years. 500mg 4x week for Polycythemia Vera. I...

https://connect.mayoclinic.org/comment/1307330/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Comment

I have seen my family doctor who sent me for more bloodwork. I seen a specialist...

https://connect.mayoclinic.org/comment/780564/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

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