Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

556 total results

Comment

I understand that itching too well, when I first got diagnosed with PV I went through...

https://connect.mayoclinic.org/comment/895517/

Discussion: Polycythemia Vera (PV) and fatigue: What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

If you don't want to take a chemo drug, you could ask about Pegasys (interferon). I...

https://connect.mayoclinic.org/comment/764406/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

see another doctor. The itching is petaechia which signals a blood disorder, or bone marrow disorder...

https://connect.mayoclinic.org/comment/1515466/

Discussion: I think I have Immune thrombocytopenia (ITP)

Support Group: Blood Cancers & Disorders

Posted: Feb 27 5:47am

Comment

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

I have PV and ET, diagnosed 10 yrs ago. I've been on hydrea 500 mg once...

https://connect.mayoclinic.org/comment/1580091/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: May 21 4:49pm

Comment

This what I found Many researchers believe it is caused cytokines; chemicals released into the blood...

https://connect.mayoclinic.org/comment/959412/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Comment

I’m 78, diagnosed in 2021 with pv. On hydroxyurea 1000mg and hematocrit stays at 45. Itching...

https://connect.mayoclinic.org/comment/833829/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Comment

I had horrible itching, especially after showering. We lowered the water hardness and I used a...

https://connect.mayoclinic.org/comment/1293855/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Comment

Thank you for the explanation about the histamine. I do better when I know the reason...

https://connect.mayoclinic.org/comment/1259431/

Discussion: ET Jak2 mutation itching

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Comment

I’m also on 500 mg/day since the first of April. I also experienced a lot of...

https://connect.mayoclinic.org/comment/1581545/

Discussion: Is itching a normal side effect when taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: May 23 5:49pm

1
…
9
10
11
12
13
…
53