Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

129 total results

Comment

I think we all have theories about what caused our ET. My onset was age 55....

https://connect.mayoclinic.org/comment/1044606/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

God loves each and every one of us and does not relish seeing our pain and...

https://connect.mayoclinic.org/comment/1467013/

Discussion: MAID (Medical Aid In Dying)

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2025

Comment

Hi Joe, I don’t have CMML but I did have AML, now in remission after a...

https://connect.mayoclinic.org/comment/683276/

Discussion: Looking for recommendations of doctors with expertise in CMML

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2022

Comment

Hi @susanmarie52 It’s really encouraging that you are in active surveillance. Though there are different ‘types’...

https://connect.mayoclinic.org/comment/1634417/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jul 31 1:32pm

Comment

I have had CMML/Myeloproliferative disease for ten years and have tried everything for itching. I currently...

https://connect.mayoclinic.org/comment/1246622/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Comment

I have been diagnosed with MDS 2016. Now I have been diagnosed with CMML. 3 yrs...

https://connect.mayoclinic.org/comment/1328601/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Comment

Thank you again Lori. I am doing fine on the hydroxy 1000mg in the morning. I...

https://connect.mayoclinic.org/comment/1096464/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Comment

At my annual clinic visit last summer I met with Dr. Go at Mayo, Rochester, and...

https://connect.mayoclinic.org/comment/297628/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2020

Comment

Diagnosed with MF 3+/3 in January 2026. This after a frustrating 3 year journey of symptoms,...

https://connect.mayoclinic.org/comment/1537181/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 10:04am

Comment

I have been in hydroxy for 6 weeks now. I take 2(500mg) a day. I was...

https://connect.mayoclinic.org/comment/1119123/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

1
…
9
10
11
12