Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

118 total results

Comment

I am taking Hydrea 1000 mg a day for essential thombocytosis. I wanted to ask if...

https://connect.mayoclinic.org/comment/777822/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Comment

Per the Mayo Clinic, thrombocytosis is having too many red platelets. What I read says thrombocytopenia...

https://connect.mayoclinic.org/comment/1382460/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

Comment

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Comment

I saw the following comment and it may help you understand this condition further : "...

https://connect.mayoclinic.org/comment/1102762/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Comment

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Comment

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

@1pearl Since you’re new to the diagnosis of ET, you might want to look through some...

https://connect.mayoclinic.org/comment/1211379/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

Comment

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Comment

I am 73 years old. My brother also has essential throbocytosis because we inherited the same...

https://connect.mayoclinic.org/comment/1035204/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

Comment

My brother and I have the JAK 2 mutation. I take 500 mg of Hydrea but...

https://connect.mayoclinic.org/comment/981617/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023