Blood Cancers & Disorders Support Group

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Comment

@jeffreykassover1 Jeff good to hear that you are having better results with the Vidaza. I hope...

https://connect.mayoclinic.org/comment/1328989/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Comment

I have MDS IB2. My blast count was 10% when diagnosed. After 3 rounds of vidaza...

https://connect.mayoclinic.org/comment/1273246/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

Comment

Love this story, @dancouclanel4! You’re having amazing success with your treatment for AML. Going from 26%...

https://connect.mayoclinic.org/comment/1250805/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Comment

I was on Jakafi for 8 months and went through 6 cycles of Vidaza treatments which...

https://connect.mayoclinic.org/comment/907546/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

Comment

I have finished 4 rounds. I’m getting 70mgs of Vidaza (3 infusions) and 1 Venclexta/day for...

https://connect.mayoclinic.org/comment/1338146/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Comment

Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased...

https://connect.mayoclinic.org/comment/1185598/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

Comment

Wow, Lori! Thank you for your wonderful message. It is very comforting to talk with knowledgeable...

https://connect.mayoclinic.org/comment/1327847/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2025

Comment

Roywalton, Thank you for your note. Yes, my care team is looking for a match. Good...

https://connect.mayoclinic.org/comment/1315727/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 29, 2025

Comment

Hi @jps01, from my experience with leukemia and hundreds of blood tests over the past 4...

https://connect.mayoclinic.org/comment/928445/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Comment

Hi Larry, Glad you are doing well on Jakafi. I was on it from 12/22-8/23 in...

https://connect.mayoclinic.org/comment/1013874/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024