Blood Cancers & Disorders Support Group

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Comment

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Comment

In studies, Besremi has been successfully used for ET. It has been shown to reduce the...

https://connect.mayoclinic.org/comment/1488954/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 2:17pm

Comment

Hi @chimo I don’t usually chime in on ET threads because it’s not an area of...

https://connect.mayoclinic.org/comment/1547371/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 2:19pm

Comment

Hi @mone83 Oh my gosh, I’m so sorry you’re having such a difficult time with not...

https://connect.mayoclinic.org/comment/1589202/

Discussion: Does anyone have change in taste while on hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 2:17pm

Comment

Hi @esperanzam The other medications used in the treatment of Essential Thrombocythemia are Anagrelide and Alpha...

https://connect.mayoclinic.org/comment/792359/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Comment

Welcome to Connect, @livingwithet. Thank you for sharing your ET diagnosis and experience with @tessa and...

https://connect.mayoclinic.org/comment/1149070/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Comment

Hi @shenriq In addition to the Breast Cancer group, I included your post in the Blood...

https://connect.mayoclinic.org/comment/203930/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

Comment

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

Comment

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

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