Blood Cancers & Disorders Support Group

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Comment

@garyr443 I am also CALR. It was my understanding that CALRs run less risk for clots,...

https://connect.mayoclinic.org/comment/1591253/

Discussion: Hydroxyurea and Sun Exposure

Support Group: Blood Cancers & Disorders

Posted: Jun 5 10:13am

Comment

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Comment

Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation...

https://connect.mayoclinic.org/comment/1215129/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2025

Comment

Hi @esperanzam The other medications used in the treatment of Essential Thrombocythemia are Anagrelide and Alpha...

https://connect.mayoclinic.org/comment/792359/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Comment

In studies, Besremi has been successfully used for ET. It has been shown to reduce the...

https://connect.mayoclinic.org/comment/1488954/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 2:17pm

Comment

Welcome to Connect, @livingwithet. Thank you for sharing your ET diagnosis and experience with @tessa and...

https://connect.mayoclinic.org/comment/1149070/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Comment

@gigi05 Yes, I take 7,500 mg of HU each week. As to inflammation, here's what Google...

https://connect.mayoclinic.org/comment/1611336/

Discussion: JAK2 ET and monoclonal antibody INCA44989 treatment

Support Group: Blood Cancers & Disorders

Posted: Jul 2 2:28pm

Comment

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

Comment

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

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