Blood Cancers & Disorders Support Group

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...

My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...