Blood Cancers & Disorders Support Group

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

Has anyone been living with,ET, jac2 mutation

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...

Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...