329 total results
Discussion
Essential Thrombocythemia
Hello, I would like to know if there are any non-hormonal treatment options for a 52-year-old woman with essential thrombocythemia? It is so hard to...
Discussion
Finding a specialist for Essential Thrombocythemia
Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...
Discussion
Polycythemia Vera or Essential Thrombocythemia ?
My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...
Discussion
Essential Thrombocythemia (ET) and viruses
I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...
Discussion
Essential Thrombocythemia treatment with Besremi
At my last appointment with my haematologist 2 weeks ago, he gave me the choice of starting HU or Besremi injections every two weeks. After...
Discussion
Essential Thrombocythemia and relationship to stroke
I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...
Discussion
ET - Essential Thrombocythemia & Fainting
What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...
Discussion
Nutrition for Essential thrombocythemia (ET) diagnosis
Hello,Newly diagnosed with Jak2 ET. Started Hydrea and 81 mg aspirin. Very low iron levels.Has anyone come across a specific diet recommendation to accompany this...
Discussion
Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?
I developed Sjogrens's a couple of years after being diagnosed with Essential Thrombocythemia. Anyone else experience the same?Go fight, my warrior friends
Discussion
Is Essential Thrombocythemia a blood disease or cancer?
I’m confused because I think Hydroxyurea is a chemo drug. Can someone clarify this for me?
Comment
Hi @skholman, welcome. I moved your message about sharing treatments for essential thrombocythemia to this existing...
https://connect.mayoclinic.org/comment/1264798/
Comment
Hi Beth, I moved your message about the update on your diagnosis to your original discussion....
Comment
Hi @akiannejad123 and welcome to Connect. That pain and weakness must be so confusing to have...
Comment
@sdduan, I moved your message to this existing discussion where you can connect with many members...
Connect