Blood Cancers & Disorders Support Group

Hello, I would like to know if there are any non-hormonal treatment options for a 52-year-old woman with essential thrombocythemia? It is so hard to...

Has anyone been switched from Hydrea to Aggrenox and if so any side effects?

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...

Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...

At my last appointment with my haematologist 2 weeks ago, he gave me the choice of starting HU or Besremi injections every two weeks. After...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...

I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...

I’m confused because I think Hydroxyurea is a chemo drug. Can someone clarify this for me?

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

Has anyone been living with,ET, jac2 mutation

My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?