Blood Cancers & Disorders Support Group

Hello, I would like to know if there are any non-hormonal treatment options for a 52-year-old woman with essential thrombocythemia? It is so hard to...

I recently came upon a fairly recent article about the monoclonal antibody INCA44989 treatment for JAK2 ET. It supposedly has a roughly 70% positive response...

I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

At my last appointment with my haematologist 2 weeks ago, he gave me the choice of starting HU or Besremi injections every two weeks. After...

Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...

My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

Hello,Newly diagnosed with Jak2 ET. Started Hydrea and 81 mg aspirin. Very low iron levels.Has anyone come across a specific diet recommendation to accompany this...

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

I’m confused because I think Hydroxyurea is a chemo drug. Can someone clarify this for me?

Has anyone been living with,ET, jac2 mutation

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

I developed Sjogrens's a couple of years after being diagnosed with Essential Thrombocythemia. Anyone else experience the same?Go fight, my warrior friends

I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...

I felt confused and freaked out after the diagnosis. It seemed no one knew much about ET. I didn't know that hydroxyurea was chemo in...

I was just diagnosed with ET. I am 61 years old. My platelet count is 640k right now.Doctor suggested I take a baby aspirin everyday...

Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.