Blood Cancers & Disorders Support Group

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...

I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...

I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...

I’ve seen very little about what causes a genetic corruption that leads to iessential Thrombocythemia. However i’ve been going back and acquiring past blood tests...

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I...

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...

I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week....

Hi I’ve recently been diagnosed with ET, I have never heard of it before my diagnosis and would love to chat with others who have...