Blood Cancers & Disorders Support Group

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

Has anyone been living with,ET, jac2 mutation

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...

Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

My husband has both, some days good, some not so much. ET is managed with hydra & aspirin MCI is a learning curve for me...

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.

I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...

I’ve seen very little about what causes a genetic corruption that leads to iessential Thrombocythemia. However i’ve been going back and acquiring past blood tests...

I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...

Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I...

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...

I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week....