Blood Cancers & Disorders Support Group

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Comments (277)

Hi @skholman, welcome. I moved your message about sharing treatments for essential thrombocythemia to this existing...

https://connect.mayoclinic.org/comment/1264798/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Hi Beth, I moved your message about the update on your diagnosis to your original discussion....

https://connect.mayoclinic.org/comment/807659/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

@panamsandy, you may also wish to check out this related discussion: - Essential Thrombocythemia (ET): foods,...

https://connect.mayoclinic.org/comment/1319805/

Discussion: Lowering platelet level with food

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2025

Yes, I was diagnosed with Essential Thrombocythemia, a Myloproliferative Neoplasm, 12/23 additionally Sjögren’s syndrome 12/25.

https://connect.mayoclinic.org/comment/1471722/

Discussion: MPN: How do you deal with out of control hives?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

@pattycz, you might also be interested in this related discussion: - Essential Thrombocythemia: Making treatment decisions:...

https://connect.mayoclinic.org/comment/1136915/

Discussion: What about no treatment for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2024

Welcome, @gama1287. Getting a new diagnosis comes with a steep learning curve. You've come to the...

https://connect.mayoclinic.org/comment/1464606/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Looking for a support group for newly diagnosed Essential Thrombocythemia due JAK2 genetic mutation. This is...

https://connect.mayoclinic.org/comment/1464573/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Essential Thrombocythemia is one of a related group of blood cancers known as “myeloproliferative neoplasms” (MPNs)...

https://connect.mayoclinic.org/comment/893561/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

@sdduan, I moved your message to this existing discussion where you can connect with many members...

https://connect.mayoclinic.org/comment/949360/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2023

Hi @akiannejad123 and welcome to Connect. That pain and weakness must be so confusing to have...

https://connect.mayoclinic.org/comment/276869/

Discussion: Anyone have CALR mutation with constitutional symptoms?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2019

@jeanette1954, welcome. Do you have essential thrombocythemia? Are you on treatment?

https://connect.mayoclinic.org/comment/1462393/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2025

I have Essential Thrombocythemia JAK2+ and Osteoporosis.

https://connect.mayoclinic.org/comment/1214981/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2025

Hi @tamara, I want to add my welcome along with @pmm. I’m so glad you found...

https://connect.mayoclinic.org/comment/1152492/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2024

Welcome @jaebless. It's so unsettling to see blood lab results before having a chance to discuss...

https://connect.mayoclinic.org/comment/797037/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2023

@bobala, Many people have asked a similar question when diagnosied with one of the several types...

https://connect.mayoclinic.org/comment/1318106/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

Hi @cindy, Welcome to Connect. It sounds like you have experience with ET. We have several...

https://connect.mayoclinic.org/comment/1086258/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Hi Vicky58, There’s a large network of members in Connect who also have ET and share...

https://connect.mayoclinic.org/comment/1102781/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

@magnolia1949, I'd like to add my welcome. You might also appreciate these related discussions: - Essential...

https://connect.mayoclinic.org/comment/971761/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

Hi @sugarbeez (love your username), you might be interested in this discussion related to your question...

https://connect.mayoclinic.org/comment/969187/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2023

Welcome @lindamarie63. I hope you saw the helpful replies from several members living with ET with...

https://connect.mayoclinic.org/comment/1191118/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024