Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

340 total results

Comments (298)

Good morning, @jose10. What a lovely thing to say!! This is one of those really ‘feel...

https://connect.mayoclinic.org/comment/1458352/

Discussion: Thanks: Just want to say thank you

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

Okay, so I have a diagnosis, but it really is not that clear. The pathology report...

https://connect.mayoclinic.org/comment/806600/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes...

https://connect.mayoclinic.org/comment/1111659/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I've seen lots of comments here about itchy, dry skin, and unfortunately I experience it too....

https://connect.mayoclinic.org/comment/1203450/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2025

@lehall125 You and others might find my experience informative. I was diagnosed with essential thrombocythemia about...

https://connect.mayoclinic.org/comment/1471947/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:39am

Hi, @rosew1969 Welcome to Connect…I’m so happy to see you here! Your positivity is infectious with...

https://connect.mayoclinic.org/comment/1411805/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

I saw the following comment and it may help you understand this condition further : "...

https://connect.mayoclinic.org/comment/1102762/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

My platelets were 1094 when I was dx with Essential Thrombocythemia 4 or 5 months ago....

https://connect.mayoclinic.org/comment/923136/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

Hi @divaterry, Well, dare I say welcome? I’m sure the news of having ET or essential...

https://connect.mayoclinic.org/comment/1548555/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 12 9:24am

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

I have essential thrombocythemia, with JAK2 gene. Diagnosed in 2022 after a emergency gall bladder operation....

https://connect.mayoclinic.org/comment/1020141/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

@scnana Welcome to Mayo Clinic Connect! Getting a double diagnosis is certainly not for the faint-hearted,...

https://connect.mayoclinic.org/comment/1009127/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Hi @mtnlife, It’s wonderful news that there’s no sign of CML or other blood cancers. So...

https://connect.mayoclinic.org/comment/786698/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

I have had essential thrombocythemia since 2022. My oncologist put me on hydroxyurea 1000 mg a...

https://connect.mayoclinic.org/comment/1498573/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 9:07am

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Triple Negative Essential Thrombocythemia hi all, I have seen my platelet counts going up over past...

https://connect.mayoclinic.org/comment/942512/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

I have had Essential Thrombocythemia for over 8 years and been on Hydroxyurea (Hydrea) the whole...

https://connect.mayoclinic.org/comment/893493/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023