Blood Cancers & Disorders Support Group

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Comments (207)

I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...

https://connect.mayoclinic.org/comment/910025/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...

https://connect.mayoclinic.org/comment/1091333/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 21 5:57pm

Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...

https://connect.mayoclinic.org/comment/1076631/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 28 4:39pm

I had a TIA at the end of 2014. After seeing many Doctors one Doctor referred...

https://connect.mayoclinic.org/comment/803429/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

I was recently diagnosed with Essential thrombocythemia. My platelet count was in the upper 700's. Hematologist...

https://connect.mayoclinic.org/comment/941461/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

If you decide to take HU, try it a couple of times per week for a...

https://connect.mayoclinic.org/comment/1022375/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25 1:00pm

Hi @mtnlife, we’re often our own worst enemies when it comes to all things medical. I...

https://connect.mayoclinic.org/comment/791520/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia...

https://connect.mayoclinic.org/comment/967884/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...

https://connect.mayoclinic.org/comment/719531/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Hello @cherilynb Feeling that your doctors are dismissive is one of the most frustrating things. Especially...

https://connect.mayoclinic.org/comment/845127/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hi @arti4 I read over another discussion you started regarding Hydroxyurea for ET, and see that...

https://connect.mayoclinic.org/comment/728880/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Hi, I just read your post and am sorry that you are having a tough time...

https://connect.mayoclinic.org/comment/820895/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Hello Tessa, my brother was diagnosed with ET (Essential Thrombocythemia) at the end of 2011. He...

https://connect.mayoclinic.org/comment/57927/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2012

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Good Morning Tessa. I set up a google alert for Essential Thrombocythemia because of the rarity...

https://connect.mayoclinic.org/comment/57922/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2011

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 9:03am

Hi Linda. Hydroxyurea is a standard first line treatment for some blood conditions such as ET....

https://connect.mayoclinic.org/comment/1146907/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 24 9:53pm

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022