Blood Cancers & Disorders: Discussions | Page 9

Oh my - 12 BMB in 2 years! Wow. I am happy that you're experience with...

https://connect.mayoclinic.org/comment/607951/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

After being diagnosed with ALL, then T-Cell large granular LL. I wondered by my platelets went...

https://connect.mayoclinic.org/comment/1325185/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 11 5:21pm

Thanks to katgob and janemc for your responses. I take the HU to lower my platelet...

https://connect.mayoclinic.org/comment/1217203/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 8:40am

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Welcome, @lourdene. There are many members here living with essential thrombocythemia with JAK2. Specifically, I believe...

https://connect.mayoclinic.org/comment/788174/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Great to hear of someone doing well. Cheers. One thing I would say to consider, is...

https://connect.mayoclinic.org/comment/771273/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

In 2004, I was diagnosed with Essential Thrombocythemia (ET) at the age of 32. This diagnosis...

https://connect.mayoclinic.org/comment/1225769/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30 5:50pm

I am 65 years old and seem to be a rare male here. Not surprising since...

https://connect.mayoclinic.org/comment/1117080/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Welcome @betherelynda and @arti4. I moved your recent posts about essential thrombocythemia and hydroxyurea to this...

https://connect.mayoclinic.org/comment/729870/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2022

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Hi @cweible19782006 I just read through your reply and my first thought was, “Wow…with friends like...

https://connect.mayoclinic.org/comment/821825/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...

https://connect.mayoclinic.org/comment/284527/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2019

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

I am not a farmer but I have ET (essential thrombocythemia). I have had it for...

https://connect.mayoclinic.org/comment/913030/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...

https://connect.mayoclinic.org/comment/826011/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 10:38am

Hi @bshattuck138 It sounds like Becky has found the sweet spot of balance with the HU...

https://connect.mayoclinic.org/comment/1348045/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 12 hours ago

Just so we're all on the same page, here's what yr referencing: Cytoreductive treatment with hydroxyurea...

https://connect.mayoclinic.org/comment/1297950/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 6 7:00am

Yes, and Yes I am doing the 500 mg twice daily (one in AM one in...

https://connect.mayoclinic.org/comment/792898/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Blood Cancers & Disorders Support Group