Blood Cancers & Disorders Support Group

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Comments (126)

Hello Paul! One thing I have learned is SMZL is not easy to diagnose. Mine came...

https://connect.mayoclinic.org/comment/1005174/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

Bloating, stomach full after eating just a little, constipation. Had a CT scan that showed I...

https://connect.mayoclinic.org/comment/894360/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

Welcome, Sally. Yes, we have quite a group of members talking about splenic marginal zone lymphoma...

https://connect.mayoclinic.org/comment/716513/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2022

Fantastic news! Thank you for sharing your progress report. Rituximab worked its magic for me too...

https://connect.mayoclinic.org/comment/655727/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2021

My SMZL journey began October of 2021. I was having night sweats and my PCP did...

https://connect.mayoclinic.org/comment/785057/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2022

Hi Laurie, Thank you for sharing those details - I'm sure everyone will be curious. There...

https://connect.mayoclinic.org/comment/1008059/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Hi….am grabbing all the info I can on this SMZL. Rather daunting I think. I see...

https://connect.mayoclinic.org/comment/661414/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2021

Hi and welcome to Connect. You didn’t actually ask a question but my guess is that...

https://connect.mayoclinic.org/comment/642435/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2021

Hello, it has been a while since I posted anything regarding my SMZL treatments. I have...

https://connect.mayoclinic.org/comment/655712/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2021

Hi Lori, thank you for the quick reply. Hello everyone! It’s been difficult finding others who...

https://connect.mayoclinic.org/comment/1241571/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 20 1:30pm

Paul, My understanding is the re-occurrence is the same type B cell. The b cells, good...

https://connect.mayoclinic.org/comment/1008272/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

Good morning, Stanley. SMZL is fortunately, (is that even the right word when dealing with a...

https://connect.mayoclinic.org/comment/654959/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2021

Hi @bethesdababe I found several discussions within the blood cancer group with members who have Marginal...

https://connect.mayoclinic.org/comment/807860/

Discussion: Worsened Myositis From Chemo

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Theresa, Hello, I cannot provide much information as to when treatment actually starts. I'm about your...

https://connect.mayoclinic.org/comment/693217/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022

Hi Andi, I'm a 70 yr old woman who was diagnosed with SMZL 6 weeks ago...

https://connect.mayoclinic.org/comment/647936/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2021

I am receiving my treatment from Ironwood Cancer center in Phoenix, AZ. I'm 70 yr old...

https://connect.mayoclinic.org/comment/661449/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2021

Hi, you and I have connected during part of your journey here on Connect with SMZL....

https://connect.mayoclinic.org/comment/647941/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2021

Hi jlh1, In my case, after 6 months and many tests, I ended up being diagnosed...

https://connect.mayoclinic.org/comment/1166662/

Discussion: Waldenstrom's, CLL or MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2024

Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...

https://connect.mayoclinic.org/comment/1203242/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 2:38pm

Theresa , I had labs and CT this morning and will have Hematology and Oncolgy appointments...

https://connect.mayoclinic.org/comment/771244/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022