Blood Cancers & Disorders: Discussions | Page 6

Lynnevb, I have been taking jakafi for almost two years with no side effects.I was diagnosed...

https://connect.mayoclinic.org/comment/1003544/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 10:55am

I was diagnosed with Polycythemia Vera about three years ago. It was explained to me that...

https://connect.mayoclinic.org/comment/1163233/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26 11:41pm

Hi @suanne90. You’ve popped into a conversation in the Blood Cancers & Disorders Support Group. The...

https://connect.mayoclinic.org/comment/1166282/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 1 1:28pm

@colleenyoung thank you for this really helpful information. It does does sound like my doctor may...

https://connect.mayoclinic.org/comment/328622/

Discussion: Newly diagnosed with “Thick Blood”. Should I be concerned?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

My wife was actually diagnosed with Polycythemia Vera in 1978. Back then it wasn’t known as...

https://connect.mayoclinic.org/comment/759857/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2022

I used to donate regularly for many many years before covid, then it started rising after...

https://connect.mayoclinic.org/comment/1038271/

Discussion: Does anyone have Hemocromatosis and??

Support Group: Blood Cancers & Disorders

Posted: Mar 22 10:35am

Do you have Polycythemia Vera or Polycythemia? If it’s primary, PV I would stick with your...

https://connect.mayoclinic.org/comment/1061818/

Discussion: Erythrocytosis (Polycythemia): Do I need an oncologist?

Support Group: Blood Cancers & Disorders

Posted: May 4 6:23am

Hey Lisa! I have pretty Much all The same Symptoms and am JAK2 pos. My platelets...

https://connect.mayoclinic.org/comment/1162393/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25 6:33am

Hello, new world. I am 47 and diagnosed yesterday with Polycythemia Vera. Headed to Mayo in...

https://connect.mayoclinic.org/comment/838030/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Hi @leann1 and welcome to Mayo Connect. We have several members who are curious about purchasing...

https://connect.mayoclinic.org/comment/878028/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

I also have been diagnosed Nov. 25th with Polycythemia my doctor is highly confident that it...

https://connect.mayoclinic.org/comment/782658/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

I know this is an old thread, but I saw the mention of Camp LeJeune. I...

https://connect.mayoclinic.org/comment/194352/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2020

Hi @cherren11. I’d like to welcome you to Mayo Connect though I’m certainly sorry to hear...

https://connect.mayoclinic.org/comment/1025672/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 1 5:45pm

Lori, thank you very much for your comments, which are most helpful. My CT Scan was...

https://connect.mayoclinic.org/comment/840197/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Welcome Linda. Here you can connect with others living with Polycythemia Vera like @chadknudson @hope19 @atir...

https://connect.mayoclinic.org/comment/647644/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2021

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9 9:19am

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

Thank you for your quick response. Can you help me understand a bit more?--he said the...

https://connect.mayoclinic.org/comment/194309/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

Hi everyone I just started taking hydroxyurea it’s only been a week. I’m on 500 one...

https://connect.mayoclinic.org/comment/1016598/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16 7:08am

I’m diagnosed with PV Polycythemia Vera. The phlebotomies are to lower my hematocrit but I’ve noticed...

https://connect.mayoclinic.org/comment/835194/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023