Blood Cancers & Disorders Support Group

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Comments (126)

Hi and thanks for sharing your story. I’m 45 and was diagnosed with SMZL about 2...

https://connect.mayoclinic.org/comment/853408/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 2, 2023

cdwilm27, Hello, Is nice to see your labs are showing improvement and hope they continue. I...

https://connect.mayoclinic.org/comment/651457/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2021

Hi @trevtwin, along with @elainejarrett and @trixie1, you can also connect with @cdwilm27 @reneemp @stankent and...

https://connect.mayoclinic.org/comment/866073/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Sunfishgirl. Thanks for checking in. I hope you are doing well. I expect you may have...

https://connect.mayoclinic.org/comment/784172/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

I think you should do what is required to be as comfortable as possible with your...

https://connect.mayoclinic.org/comment/662132/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2021

Yes, Once there are medical concerns, much information is available. And learning is good, and feel...

https://connect.mayoclinic.org/comment/646846/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2021

Thank you so much for sharing with me what's going on with you. I had pain...

https://connect.mayoclinic.org/comment/218738/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

I also had a long duration cold in Oct. I ended up with a sinus infection...

https://connect.mayoclinic.org/comment/1178696/

Discussion: Anyone have a low IgM and struggling with a cold virus

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Hi @monicalu2626, my doc started me with Brukinsa (aka Z) last June. I think my WBCs...

https://connect.mayoclinic.org/comment/1242909/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 22 9:54am

I'm sure BB I had SMZL in 2022 but no one diagnosed it. My former oncologist...

https://connect.mayoclinic.org/comment/996712/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Thank you for welcoming me. Smzl is so rare it's hard to find others with the...

https://connect.mayoclinic.org/comment/1247981/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Mar 1 10:43am

Hi Stan, yes I have been blessed. I wondered about the variety of rounds of Rituximab...

https://connect.mayoclinic.org/comment/730115/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2022

Paul. Just want to say hello and welcome you to this connect site. As you read...

https://connect.mayoclinic.org/comment/1004896/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

It is interesting to see how the infusions are improving your health and like to hear...

https://connect.mayoclinic.org/comment/661721/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2021

jam1962 Just an update. That was March of 2023 that I had commented and I had...

https://connect.mayoclinic.org/comment/1168576/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Am a Newly diagnosed SMZL’er. My journey started when my new primary discovered my enlarged spleen...

https://connect.mayoclinic.org/comment/658031/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2021

Hello Sally! It’s so important to be able to talk with others about SMZL especially since...

https://connect.mayoclinic.org/comment/716572/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2022

Lori, It is so encouraging to have forums such as these to share and talk about...

https://connect.mayoclinic.org/comment/655283/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2021

Hello Coleen and Stan. I had my labs drawn last Friday, They are still fairly good....

https://connect.mayoclinic.org/comment/661405/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2021

Hi Laurie, I just saw this post - I hope you are still doing well! I...

https://connect.mayoclinic.org/comment/1004354/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2024