Blood Cancers & Disorders Support Group | Page 5

I was on hydroxyurea (Hydrea) for 7 years for Essential Thrombocythemia (aka way too many platelets)...

https://connect.mayoclinic.org/comment/1119537/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

Since there is no cure for Essential Thrombocythemia, and it is a progressive disease, why are...

https://connect.mayoclinic.org/comment/57937/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2012

I Googled why was essential thrombocythemia reclassified from a blood disorder to blood cancer ? I...

https://connect.mayoclinic.org/comment/1301793/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Welcome to Mayo Connect, @amterrazas1. Stereotactic body radiotherapy (SBRT) is a type of precisely focused radiation...

https://connect.mayoclinic.org/comment/1539487/

Discussion: Anyone with ET (JAK2+ or CALR) had SBRT (radiotherapy)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 10:05am

Welcome to Mayo Connect, @rachelpabs. With your history of essential thrombocythemia, it’s important to have regular...

https://connect.mayoclinic.org/comment/960764/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

In studies, Besremi has been successfully used for ET. It has been shown to reduce the...

https://connect.mayoclinic.org/comment/1488954/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 2:17pm

Hi @esperanzam The other medications used in the treatment of Essential Thrombocythemia are Anagrelide and Alpha...

https://connect.mayoclinic.org/comment/792359/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

@maine here's the procedure code that was on my EOB when I had the Jak 2...

https://connect.mayoclinic.org/comment/1530266/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 9:21pm

@gajokos hi~ I was diagnosed with sMF, in June 2025, but was a little out of...

https://connect.mayoclinic.org/comment/1504852/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 13 12:04pm

Hi @sarahgault, Welcome to Connect. I’m glad your best friend found this forum for you! They’re...

https://connect.mayoclinic.org/comment/1551911/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 10:09am

Welcome to Connect, @livingwithet. Thank you for sharing your ET diagnosis and experience with @tessa and...

https://connect.mayoclinic.org/comment/1149070/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hi @shenriq In addition to the Breast Cancer group, I included your post in the Blood...

https://connect.mayoclinic.org/comment/203930/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

A high platelet count suggests Essential Thrombocythemia, but you need to confirm if that is the...

https://connect.mayoclinic.org/comment/252017/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

Hi @cshew, Rapamycin (Sirolimus) is a medication primarily used as an anti-rejection meditation for patients having...

https://connect.mayoclinic.org/comment/1153019/

Discussion: Reducing platelets with Rapamycin?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

Welcome to Mayo Connect @docoltun. Thank you for sharing your experience with ET and what’s been...

https://connect.mayoclinic.org/comment/898227/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation...

https://connect.mayoclinic.org/comment/1215129/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2025